National Scleroderma Foundation

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eLetter #966 | April 22, 2022

	Watch Our Virtual Brand Launch Last night, the National Scleroderma Foundation hosted a Virtual Brand Launch event. Our celebration highlighted our new brand through speeches, videos, and small group discussions. The evening was filled with community members connecting and sharing stories of their scleroderma journeys. We would like to thank everyone who participated and welcome those who could not attend to watch the recording. WATCH
	Amy Gietzen to be Keynote Speaker at Scleroderma Canada Conference In September, National Scleroderma Foundation member Amy Gietzen will be one of three keynote speakers at the Scleroderma Canada conference. Through her speech, Amy will be able to share her experiences and provide insight into the disease. The conference will take place September 16-17, 2022. To learn more about Scleroderma Canada's 20th Bi-Annual National Scleroderma Conference, click here.
	ATS Public Advisory Roundtable The National Scleroderma Foundation will be at the 16th Annual American Thoracic Society (ATS) Public Advisory Roundtable (PAR) Patients & Experts Forum in San Francisco on May 14, 2022. ATS’s free patients and family education day will include noteworthy panelists and critical discussions focused on lung health. For more information about the Patients & Experts Forum, please contact Mr. Courtney L. White, (212) 315-8640, cwhite@thoracic.org.
Patrizia Fuschiotti, PhD	Research Grant Awards Highlight The 2022 research grant cycle set a record for the number of applications received and the amount of funds awarded. In recognition of a high score in the peer-review process, the Walter and Marie Coyle Award was awarded to: Patrizia Fuschiotti, PhD University of Pittsburgh Established Investigator Award Research Topic: Molecular Mechanisms of CXCL13+ T Cell-B Cell Interactions in Inflammatory Systemic Sclerosis Skin Lesions You can learn more about our research grant awards and recipients here.
	The 20%: A Virtual Support Group for Men Living with Scleroderma VIRTUAL: April 27, 2022; 7 p.m. Eastern TOPIC: Lung Changes in Scleroderma Are you a male living with scleroderma? The National Scleroderma Foundation Michigan Chapter is hosting a support group for individuals like you. Join our virtual support group on April 27 from 7-8 p.m. Eastern. The session will review impacts of scleroderma on the lungs, statistics, risk factors, treatments, and healthy tips. There will also be time at the end to ask questions. REGISTER
	myPHteam Resource: Pulmonary Hypertension and Sleep Topic: Sleep Problems and Pulmonary Hypertension People with Pulmonary Hypertension frequently experience problems sleeping. Check out myPHteam resource to learn about the connection between Pulmonary Hypertension and sleep disorders. READ
	Pulmonary Hypertension in Systemic Sclerosis Webinar VIRTUAL: May 4, 2022; 3 - 4 p.m. Eastern Learn essential information about Pulmonary Hypertension in Systemic Sclerosis during a discussion with the National Scleroderma Foundation and Dr. Soumya Chatterjee, Rheumatology Education Program Director of the Cleveland Clinic, Ohio. The discussion will introduce how to identify the signs and symptoms of PAH. What exactly is Pulmonary Arterial Hypertension? How is it diagnosed? How is it treated? We will explore these topics and much more. REGISTER A special thanks to Janssen Pharmaceutical for sponsoring this event.
	National Volunteer Month In recognition of National Volunteer Month, we would like to highlight another one of our dedicated volunteers. We are honored to have Jill Seaman as a part of our foundation and a member of the Rocky Mountain Chapter. We are incredibly grateful for Jill and all volunteers who work hard to support and advocate for individuals with scleroderma.
	Teens & Parents Support Group ZOOM: April 23, 2022; 10 a.m. Mountain Calling all teens looking to connect with other teens living with scleroderma. The Albuquerque support team will have Teen & Parent Support Group meetings each month on the 4th Saturday via Zoom. The group will be led by Debra Droux, Maria Tafoya, and Jackie Martinez. Email nmsclero@gmail.com or call 505-503-3545 to receive the Zoom meeting information. We ask that a parent or caregiver be present with their teen when the meeting starts.
	Now Accepting Applications for the 2022 Pre‑Doctoral Summer Fellowship Awards Application Deadline: Friday, April 29, 2022, 5 p.m. Eastern The goal of the National Scleroderma Foundation's Pre-Doctoral Summer Fellowship Award Program is to recognize PhD students conducting research related to scleroderma. Application eligibility, requirements, and instructions are on the Foundation's website: https://scleroderma.org/mentor-programs/ Questions regarding the Pre-Doctoral Summer Fellowship Award should be directed to research@scleroderma.org or (800) 722-4673. The Summer Fellowship Awards are made possible in part by a generous contribution from the Scleroderma Foundation Greater Chicago Chapter.
	WISE Webinar for Social Security’s Ticket to Work Program VIRTUAL: April 27, 2022; 3 - 4:30 p.m. Eastern Social Security's Ticket to Work Program will be presenting "Debunking the Three Biggest Myths About Disability Benefits and Work" on April 27 from 3 to 4:30 p.m. Eastern as a part of their monthly WISE Webinars. The event will focus on the three biggest myths surrounding disability benefits and help job seekers decide if work may be right for them. This is a live, interactive event; therefore, the audience can submit questions, get guidance, and get started! SIGN UP