National Scleroderma Foundation

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eLetter #960 | March 11, 2022

	International Women's Day March 8 was International Women’s Day and we were proud to #BreakTheBias with our strong CEO Mary Wheatley. As we reflect on International Women's Day, we recognize how our work could not be accomplished without the dedication and leadership of female employees, volunteers and advocates nationwide. Thank you to all women who work hard to make the world better! To learn more about International Women’s Day, visit www.internationalwomensday.com.
	Stakeholder Update ZOOM: March 17, 2022; 4 p.m. Eastern Join CEO Mary J. Wheatley for a quarterly update on activities of the National Scleroderma Foundation. REGISTER
	Normal and Extraordinary “We are normal average kids that have an extraordinary life journey ahead of us.” Emilie Grace Julian’s scleroderma experience began when she was six years old. She and her mother, Fernella Julian, are grateful to the National Scleroderma Foundation and are raising awareness about this complex disease. WATCH
	Bilingual Support Group El Grupo Bilingüe de Apoyo de la Fundación Nacional de Esclerodermia te invita a su reunión vía zoom “Ulceras Digitales en Esclerodermia,” el próximo 12 de marzo del 2022. 10:00 a.m. (Mexico) 11:00 a.m. (Colombia) 11:00 a.m. (Ecuador) 11:00 a.m. (USA) 1:00 p.m. (Argentina) 5:00 p.m. (España) Por favor envíe sus preguntas al correo electrónico miamiradgroup@gmail.com antes de la reunión. A continuación, vínculo para registrarse al evento. REGISTRARSE
	Virtual Scleroderma Education Summit Saturday, March 12, 2022 10 a.m. Mountain - Navigating Scleroderma 11 a.m. Mountain - Making Impactful Change Through Wellness 12 p.m. Mountain - Helping Kids Cope When a Parent Lives with Chronic Illness The Rocky Mountain Chapter will host a virtual Scleroderma Education Summit on March 12, 2022. All sessions are virtual on Zoom. Therefore, you should register for each session you would like to attend at the event website. Attendees are encouraged to submit their questions in advance to rmchapter@scleroderma.org. For more information, please contact Christine Shephard at (303) 806-6686 or cshephard@scleroderma.org. Sessions will be recorded and uploaded to our YouTube channel. REGISTER
	Caregiver Connection ZOOM: March 19, 2022; 10 a.m. Mountain All caregivers are welcome. Sara Clement, Southern Colorado Support Group Leader, will be hosting. To attend, request the Zoom link by sending an email to Sara, at sarc56@gmail.com.
	Teens & Parents Support Group ZOOM: March 26, 2022; 10 a.m. Mountain Calling all teens looking to connect with other teens living with scleroderma. The Albuquerque support team will have Teen & Parent Support Group meetings each month on the 4th Saturday via Zoom. The group will be led by Debra Droux, Maria Tafoya, and Jackie Martinez. Email nmsclero@gmail.com or call 505-503-3545 to receive the Zoom meeting information. We ask that a parent or caregiver be present with their teen when the meeting starts.
	Central Pennsylvania Support Group Guest Speaker ZOOM: April 6, 7 to 8 p.m. Eastern The Central Pennsylvania Support Group will host Dr. Alan Baer from Johns Hopkins University on April 6. Dr. Baer will speak about Sjogren's Syndrome. To register for this virtual meeting, please email Dan Caruso at raeprod@yahoo.com or Michelle McPherson at sclerocentralpa@yahoo.com for the Zoom link. The presentation will end with a question and answer session.
	Call for Leadership Nominations Join the National Scleroderma Foundation Board of Directors in leading the Foundation into the future. Do you have thoughts and ideas on how to help the Foundation meet its mission? Are you passionate about serving the community of people affected by scleroderma? Are you a strategic thinker focused on outcomes? Consider serving on the National Scleroderma Foundation Board of Directors. This year, the Board is focused on recruiting leaders with specific expertise in research, philanthropy, awareness building, and grassroots events strategy. Candidates from the Midwest and West are strongly encouraged to apply to ensure a good balance in terms of geographic distribution of the board. In addition, the Board is interested in recruiting new members with diverse backgrounds and perspectives, as well as new voices. The position description for board members is available here. Pending approval, new board members will begin service July 1, 2022, and serve a three-year term to end June 30, 2025. Applications are due online by 5 p.m. Eastern on Friday, April 15, 2022. NOMINATIONS
	BIPOC Support Group ZOOM: March 13, 4 - 5:30 p.m. Eastern TOPIC: Creativity & Art Are Powerful Join Lucy Wong, veteran art speaker, and the BIPOC support group facilitators at their March 13 meeting. The topic will explore the power of creativity and art. Please register in advance. After registering, you will receive an email with meeting access details. REGISTER
	Advances in Scleroderma Research - Global Webinar ZOOM: April 1, 2022; 11 a.m. - 12:30 p.m. Eastern The goal of the Advances in Scleroderma Research - Global Webinar is to rapidly disseminate knowledge by promoting awareness of new advances, fostering new collaborations, creating new networks, encouraging early-stage investigators, and inspiring interested learners. Participation is free of charge and open to all interested scleroderma researchers, including trainees. Speakers & Topics: Ido Amit, PhD, and Chamutal Gur, PhD, Weizmann Institute of Science Victor J. Thannickal, MD, Tulane University Paul Hiebert, PhD, ETH Zürich REGISTER
	Anna Belle Carter Memorial Scholarship Anna Belle Carter was a wonderful 13-year-old living a full life with scleroderma when she passed away in July 2020 from COVID-19. The Anna Belle Carter Memorial Foundation was established by her family to financially assist deserving students who are affected by scleroderma in furthering their education goals at an accredited college, university, or technical school to attain an undergraduate degree, an initial graduate degree, or certification. The ABCMF awards scholarships on the basis of academic potential and demonstrated achievement, exemplary citizenship, personal character, and need. Read complete application criteria. Download an application. All applications are due by April 15, 2022, to be reviewed and awardees selected by May 4, 2022. READ
	myPHteam Alcohol and Pulmonary Hypertension: Your Guide Alcohol consumption is a common topic of discussion among community members of myPHteam. Check out this myPHteam resource and explore how alcohol consumption could affect #pulmonaryhypertension and join the discussion. JOIN
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