Evolution

We’re excited to evolve into the National Scleroderma Foundation! Our organization currently benefits more than 300,000 Americans affected by scleroderma and we plan to continue to grow our network and impact over the coming years.

SCLERODERMA.ORG

El Grupo Bilingüe de Apoyo

ZOOM: Día: Sábado 22 de Enero, 2022; Hora: 11 AM Eastern

El Grupo Bilingüe de Apoyo de la Fundación Nacional de Esclerodermia te invita a su reunión vía zoom el próximo 22 de enero del 2022 a las 11:00 am (tiempo de Miami), con la Enfermera Helen A. Ramírez, RN, BSN, en una sesión de ejercicios para ayudar a evitar la rigidez de las articulaciones de las manos y la cara.

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The 20%: A Virtual Support Group for Males Living with Scleroderma

TOPIC: New Year, New Goals
ZOOM: January 26, 2022; 7-8 PM Eastern

To support men with scleroderma in our community, the Michigan Chapter is continuing its support group series into 2022. Join the first virtual group of the year on January 26 from 7 to 8 p.m. Eastern. Starting the new year, the group will focus on goal setting to make 2022 happier and healthier for you and your loved ones. There will be time at the end to have your questions answered, too. Register now and find support and hope in the community.

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Girls Only: SYNC Meet Up

ZOOM: February 11, 2022; 7 PM Eastern

Join SYNC for a special girls only, self-care Valentine's Day celebration taking place Friday, February 11 at 7 p.m. Eastern (4 p.m. Pacific). SYNC is Scleroderma Young Adults Needing Connection.

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How to Dance in the Rain

VIRTUAL: February 26, 2022; 1 PM Eastern

Life isn't about waiting for the storm to pass, it's about learning to dance in the rain. Offered by the Michigan chapter, the conference, How to Dance in the Rain, is a time for individuals with scleroderma, their loved ones, and caregivers to find hope and to connect with one another. The event starts with opening remarks from Michigan Chapter Executive Director Laura Dyas and includes educational seminars from medical professionals, Q&A segments, exercises, and more. Click the link below on February 26 to attend.

ATTEND

Beyond Symptom Management: Personalized Medicine and the Hope in Cannabis

VIDEO: Recorded July 2021

Watch "Beyond Symptom Management: Personalized Medicine and the Hope in Cannabis," presented by JoAnna Harper, PharmD, and recorded during the 2021 virtual National Scleroderma Conference. As a scleroderma patient for over 25 years and a skeptic, Dr. Harper discusses the role that genetics, lifestyle, co-infections, and medications play in your overall health, and how we can use the newer approaches to medicine to create a personalized health action plan.

WATCH

Designated Scleroderma Research & Treatment Centers

To ensure individuals with scleroderma are provided with knowledgeable resources about diagnosis, care, and research, the National Scleroderma Foundation’s Medical & Scientific Advisory Board established criteria under which medical institutions can be designated as a scleroderma research and treatment center.

• Expertise in Care
• Conduct Scleroderma Research
• Conduct Scleroderma Education for Healthcare Professionals and Individuals

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