Martin Luther King, Jr. Day

Please accept our sincere apologies for the typo in Dr. Martin Luther King, Jr.'s name in the prior version of this eLetter.

In observance of Martin Luther King, Jr. Day, the National Scleroderma Foundation headquarters will be closed on Monday, January 17. Calls made to (800) 722-4673 and emails sent to SFinfo@scleroderma.org will be answered when the office reopens on Tuesday, January 18.

Find helpful information on scleroderma.org, and stay connected with others on our social media platforms: Facebook, Twitter, Instagram, LinkedIn, and YouTube.

New Year. New Name. New Logo.

We’ve broadened our reach with a new name: National Scleroderma Foundation! This change reflects the breadth of our outreach to educate a national audience and connect more people affected by scleroderma with specialists and resources. We've also published a refreshed website to make finding important information easier.

SCLERODERMA.ORG

Strategic Plan Update

Watch a video recording of the January 13 update on the Foundation's strategic plan, given by CEO Mary J. Wheatley. Learn about progress in our exciting work to strengthen our organization and to build capacity for growth in support of individuals affected by scleroderma, to expand our education programs, and to build greater resources for research funding.

VIDEO

BIPOC Scleroderma Support Group

ZOOM: January 16, 2022; 4 - 5 PM Eastern

Join our facilitators, Christy, Demi, Demetra, Erion, Eva, Marilyn, and Sy, for a discussion on economic disparities and resources that may help you navigate your scleroderma journey.

After registering, you will receive a confirmation email containing information about joining the meeting.

REGISTER

Share Your Experiences of Raynaud and Digital Ulcers

Individuals who have scleroderma and experience Raynaud Phenomenon and digital ulcers are invited to participate in a study led by the Scleroderma Vascular Disease Working Group of OMERACT, an international initiative of health professionals established in 1992 to improve outcome measurement in rheumatology. 

All answers are confidential. The survey takes 20 minutes to complete. You must be 18 or older, have scleroderma, and experience Raynaud Phenomenon with or without digital ulcers. There are two rounds of the survey. The survey for the first round will be available on January 17 at the link below. Another survey will be available in mid-February.

SURVEY

Girls Only: SYNC Meet Up

ZOOM: February 11, 2022; 7 PM Eastern

Join SYNC for a special girls only, self-care Valentine's Day celebration taking place Friday, February 11 at 7 PM Eastern (4 PM Pacific). SYNC is Scleroderma Young Adults Needing Connection.

REGISTER

How to Dance in the Rain

VIRTUAL: February 26, 2022; 1 PM Eastern

Life isn't about waiting for the storm to pass, it's about learning to dance in the rain. Offered by the Michigan chapter, the conference, How to Dance in the Rain, is a time for individuals with scleroderma, their loved ones and caregivers to find hope and to connect with one another. The event starts with opening remarks from Michigan Chapter Executive Director Laura Dyas and includes educational seminars from medical professionals, Q&A segments, exercises, and more. Click the link below on February 26 to attend.

ATTEND

Scleroderma Tests

VIDEO: Recorded July 2021

Watch "Scleroderma Tests," a presentation by Richard Silver, MD, recorded during the 2021 virtual National Scleroderma Conference. Dr. Silver and a team from the Medical University of South Carolina provide insights into common scleroderma tests administered in a clinic.

WATCH

Platinum Corporate Sponsor

Gold Corporate Sponsors