Happy New Year!

Feliz Año Nuevo • Bonne Année • Gelukkig Nieuwjaar • Frohes Neues Jahr • Eftychisméno To Néo Étos • Hauʻoli Makahiki Hou • Xīnnián Kuàilè • Navavarsh Kee Shubhakaamana • Athbhliain Faoi Mhaise Daoibh • Felice Anno Nuovo • Akemashiteomedetōgozaimasu • Shnorhavor Nor Tari

Please note that the Scleroderma Foundation's national office is closed in observance of the New Year holiday and will reopen Monday, January 3. Calls to (800) 722-4673 and emails to Sfinfo@scleroderma.org will be answered on Monday, January 3. In the meantime, please visit our website and social media accounts to stay informed and engaged with your scleroderma family.

SCLERODERMA.ORG

Exciting Changes Ahead

With a new year on the way, the Scleroderma Foundation is rededicating itself to our common mission to advance medical research, promote disease awareness, and provide support and education to people with scleroderma, their families, and support networks. No matter what form of scleroderma you have, or where you, your loved one, or your child are in your scleroderma journey, we are here to help you find your best path. 

To fulfill that promise, we are prepared to grow, to build a foundation for the future. Shortly after the new year, look for something new from us that we believe captures the national breadth of our community and the hopeful connections we make. We're excited about the changes ahead and we hope that you are too.

Strategic Plan Update

ZOOM: January 13, 2022; 2 PM Eastern

Join CEO Mary J. Wheatley to hear an update on the Foundation's strategic plan. Learn about progress in our exciting work to strengthen our organization and to build capacity for growth in support of individuals affected by scleroderma, to expand our education programs, and to build greater resources for research funding.

REGISTER

Curing Scleroderma

Curing scleroderma starts with each one of us. Will you help accelerate the Scleroderma Foundation's progress toward finding a cure? Go to scleroderma.org/winter to make a year-end, tax-deductible gift. Give by December 31 to take advantage of the CARES Act tax incentives that will expire this year

Disclaimer: The Scleroderma Foundation does not provide financial or tax advising. Please speak with your financial advisor about the impact your charitable giving will have.

BIPOC Scleroderma Support Group

ZOOM: January 16, 2022; 4 - 5 PM Eastern

Join our facilitators, Christy, Demi, Demetra, Erion, Eva, Marilyn, and Sy, for a discussion on economic disparities and resources that may help you navigate your scleroderma journey.

After registering, you will receive a confirmation email containing information about joining the meeting.

REGISTER

Deadlines for 2022 Health Insurance

You can still enroll in or change 2022 Marketplace health insurance right now on HealthCare.gov.

If you enroll or change a current plan by January 15, 2022, coverage will start February 1, 2022. After January 15, you can only enroll or change plans if you qualify for a Special Enrollment Period.

HEALTHCARE.GOV

Scleroderma and the Lungs

VIDEO: Recorded July 2021

Watch this presentation on scleroderma and the lungs by Kristin B. Highland, MD, MDSCR, recorded during the 2021 virtual National Scleroderma Conference. The lungs are potentially affected in all individuals who have systemic scleroderma. Individuals living with systemic scleroderma need to know how they can be proactive in helping the doctors identify any lung involvement as early as possible. There have been many exciting advances in the treatment of pulmonary fibrosis and pulmonary hypertension. This presentation reviews important complications of scleroderma and new treatments available.

WATCH

Research Updates: Juvenile Systemic Sclerosis

VIDEO: Recorded October 2021

Watch this presentation from the 2021 virtual Kids Get Scleroderma, Too! conference with Kathryn Torok, MD, of the Children's Hospital of Pittsburgh, University of Pittsburgh, Pediatric Scleroderma Center. Dr. Torok presents the latest information regarding research advances in juvenile systemic sclerosis.

WATCH

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