Happy Holidays!

The leadership and staff of the Scleroderma Foundation wish you joyous and meaningful time with your family and friends this holiday season.

Please note that the Scleroderma Foundation's national office will be closed December 27 through 31, and will reopen on January 3. Calls to (800) 722-4673 and emails to Sfinfo@scleroderma.org will be answered on Monday, January 3.  In the meantime, please visit our website and social media accounts to stay informed and engaged with your scleroderma family.

SCLERODERMA.ORG

Sunday Sitdown

FACEBOOK LIVE: December 26, 1 p.m. Eastern (12 p.m. CT, 11 a.m. MT, 10 a.m. PT)

Join the Ohio Chapter for Sunday Sitdowns on the last Sunday of every month at 1 p.m. Eastern Time via Facebook Live. This is a time to connect with others who live with the challenges caused by scleroderma.

Please note, given the open, unsecure nature of Facebook, do not share private, personal information during this conversation.

WATCH

Strategies for Self-Care in the New Year

ZOOM: January 5, 2022; 7 - 8:30 PM Eastern

The Hospital for Special Surgery's (HSS) Scleroderma, Vasculitis, and Myositis Center (SVM) and the Tri-State Chapter's New York City support group present an educational program on self-care, January 5, 2022, 7 to 8:30 PM Eastern, via Zoom. HSS speakers are Juliette Kleinman, LCSW, ACSW, and Baptiste Nicolas, LCSW, with moderator Elizabeth Soto-Cardona, MPH, of the SVM.

REGISTER

BIPOC Scleroderma Support Group

ZOOM: January 16, 2022; 4 - 5 PM Eastern

Join our facilitators, Christy, Demi, Demetra, Erion, Eva, Marilyn, and Sy, for a discussion on economic disparities and resources that may help you navigate your scleroderma journey.

After registering, you will receive a confirmation email containing information about joining the meeting.

REGISTER

How to Dance in the Rain

VIRTUAL: February 26, 2022; 1 PM Eastern

Life isn't about waiting for the storm to pass, it's about learning to dance in the rain. Offered by the Michigan chapter, the conference, How to Dance in the Rain, is a time for individuals with scleroderma, their loved ones and caregivers to find hope and to connect with one another. The event starts with opening remarks from Michigan Chapter Executive Director Laura Dyas and includes educational seminars from medical professionals, Q&A segments, exercises, and more. Click the link below on February 26 to attend.

ATTEND

Deadlines for 2022 Health Insurance

You can still enroll in or change 2022 Marketplace health insurance right now on HealthCare.gov.

If you enroll or change a current plan by January 15, 2022, coverage will start February 1, 2022. After January 15, you can only enroll or change plans if you qualify for a Special Enrollment Period.

HEALTHCARE.GOV

Overlapping Syndromes: MCTD, UCTD...Just a Lot of Letters

VIDEO: Recorded July 2021

Watch this presentation regarding common overlapping syndromes seen in scleroderma. Presented by Virginia Steen, MD, of Georgetown University Hospital, the session was recorded during the 2021 virtual National Scleroderma Conference.

WATCH

Updates on Pediatric Scleroderma Research: Juvenile Localized Scleroderma

VIDEO: Recorded October 2021

Watch this presentation from the 2021 virtual Kids Get Scleroderma, Too! conference with Suzanne Li, MD, PhD, of the Joseph M. Sanzari Children's Hospital, Hackensack Meridian School of Medicine in New Jersey. Dr. Li discusses recent developments in juvenile localized scleroderma research.

WATCH

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