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| eLetter #945 | November 26, 2021 |
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Carol Feghali-Bostwick, PhD |
Advances in Research
New findings in discovering the cause and understanding the mechanisms of scleroderma
Exciting new information about the mechanism of fibrosis and what causes it was discovered by a team of scleroderma researchers from the Medical University of South Carolina, including Carol Feghali-Bostwick, PhD., a member of the Foundation's Medical & Scientific Advisory Board. The study involved sets of twins, one with scleroderma and one without. A comparison of skin fibroblasts (cells involved in collagen production) revealed a previously unknown process that alters instructions from genes and allows increased fibrosis. The study also showed that the regulation of fibrosis can be restored. Read the article on PubMed.
READ
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How to Work Through Your Child's Emotions
Parents of Children with Scleroderma Support Group
ZOOM: Thursday, December 1, 2021; 7:30-9 PM Eastern
A medical diagnosis like scleroderma and care can be an emotional experience. Especially for a child. But you’re not alone navigating those feelings. Join us for an online support group on December 1 from 7:30-9:00 p.m. EST. to find tips to work through your child’s emotions. We’ll start with welcome remarks and an opening icebreaker, move on to an educational session with helpful tips, and end with a closing mindful moment. Register now and find support and hope in the community.
REGISTER
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Sunday Sitdown
FACEBOOK LIVE: November 28, 1 p.m. Eastern Time (12 p.m. CT, 11 a.m. MT, 10 a.m. PT)
Join the Ohio Chapter for Sunday Sitdowns on the last Sunday of every month at 1 p.m. Eastern Time via Facebook Live. This is a time to connect with others who live with the challenges caused by scleroderma.
Please note, given the open, unsecure nature of Facebook, do not share private, personal information during this conversation.
WATCH
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Giving Tuesday is November 30
Join the fight to end scleroderma on #GivingTuesday by making a gift to the Scleroderma Foundation.
Mark your calendars for Tuesday, November 30!
Give your support at scleroderma.org/givingtuesday.
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What Your Dentist and Doctor Want to Know About Scleroderma & Oral Health
VIDEO: Recorded July 2021
Watch this presentation about scleroderma and oral health from the 2021 virtual National Scleroderma Conference with David M. Leader, DMD, MPH, and Luis Del Castillo, DMD, CAGS. Many physicians and dentists need information to help people with scleroderma maintain their oral health. The presentation includes a discussion on the ways you can talk about how scleroderma affects your oral health and about the ways that your physicians and dentists may collaborate.
WATCH
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Pediatric Localized Scleroderma
VIDEO: Recorded July 2021
Watch this presentation from the 2021 virtual Kids Get Scleroderma, Too! Conference with Natalia Vasquez-Canizares, MD, as she discusses localized scleroderma, which is more common among children.
WATCH
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Scleroderma Information
Visit the Foundation's website to download and read highly informative material about scleroderma, the different forms of the disease, symptom management, and related illnesses.
READ
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Disclaimer: The Scleroderma Foundation in no way
endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is
provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.
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