Spark Awareness of Pulmonary Hypertension

Raise pulmonary hypertension awareness when you talk on Zoom or Skype to family, friends, and colleagues. If you’re in a PH Support Group, use a virtual background to show your connection with PH. 

Whether you’re using virtual meeting software for work, book club, or happy hours, use a PH Awareness Month background image to trigger questions and share information about PH. 

Start the conversation with your choice of backgrounds. Visit the Pulmonary Hypertension Association (PHA) interactive PH Awareness Month calendar to download a background.

PHA CALENDAR

Mental Health in Scleroderma

VIDEO: Recorded July 2021

Watch this presentation from the 2021 virtual National Scleroderma Conference with Ron Sasso, MS, LPC, as he discusses the changes caused by scleroderma in many areas of a person's life. It also brings different types of loss, from tangible to the ambiguous. This session explores those areas and helps you find a way through toward acceptance (not complacency) and moving forward.

WATCH

BIPOC Support Group Meeting

ZOOM: November 14, 2021; 4 - 5:30 PM Eastern

Join our facilitators for a fun and engaging open discussion geared toward understanding the activities and discussions you want to see in the future. Please email your questions and discussion ideas to our group facilitators before the meeting at CL382p@gmail.com.

After registering, you will receive a confirmation email containing information about joining the meeting. We look forward to seeing you there! 

Please register in advance for this meeting.

REGISTER

El Corazón en la Esclerodermia

GoToWebinar: Viernes 19 de Noviembre 4 - 5 PM hora del este

Únase con la Fundación de Esclerodermia y Javier Jiménez, MD, PhD, FACC para este evento educativo virtual. En esta presentación, el Dr. Jiménez revisará las complicaciones comunes relacionadas con la esclerodermia en el corazón.

REGÍSTRESE

Patrocinado por Horizon Therapeutics

#CaregiverAnd

#CaregiverAnd, the 2021 theme for National Family Caregivers Month, encourages you, the family caregiver, to celebrate the identities and passions that enrich your life. Far too often your role as a family caregiver overshadows your identity and emphasizes the care you provide for your loved one. Being a family caregiver is incredibly important, but it is critical not to lose sight of who you are. Your sense of self makes your life complete. This is an essential component of self-care that can ultimately prevent caregiver burnout and depression. #CaregiverAnd shifts that focus by highlighting the other roles, activities, and passions that make up your life.

#CAREGIVERAND

Connecting with Others

Even during a pandemic it's important to connect with others who have scleroderma to provide mutual support and to learn coping strategies and exchange other helpful information. Currently, to protect the health of individuals who have scleroderma, it is the policy of Scleroderma Foundation that there be no in-person meetings for support groups and other activities. However, many support groups have gone virtual. Visit our support group page to find a group near you, then contact the group leader to request the meeting link.

CONNECT

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