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| eLetter #941 | October 29, 2021 |
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Pulmonary Hypertension Awareness Month
November is Pulmonary Hypertension Awareness Month. The Pulmonary Hypertension Association (PHA) brings back their award-winning interactive PH Awareness Month calendar, which goes live October 31. Each day reveals an activity, fact, or resource about pulmonary hypertension and provides tools you can use to spark awareness.
We encourage you to share resources and stories with your friends, family, media, elected officials, and the public so they can learn about PH risk factors, symptoms, and diagnosis.
PHA CALENDAR
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Wound Care & Digital Ulcers in Scleroderma: An Open Conversation
VIDEO: Recorded July 2021
Watch this presentation from the 2021 virtual National Scleroderma Conference with experts Kurt Bernhisel, MD, and Tracy M. Frech, MD, MS, as they have an open and honest discussion with a scleroderma patient advocate on proper wound care and digital ulcer care.
WATCH
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El Corazón en la Esclerodermia
GoToWebinar: Viernes 19 de Noviembre 4 - 5 PM hora del este
Únase con la Fundación de Esclerodermia y Javier Jiménez, MD, PhD, FACC para este evento educativo virtual. En esta presentación, el Dr. Jiménez revisará las complicaciones comunes relacionadas con la esclerodermia en el corazón.
REGÍSTRESE
Patrocinado por Horizon Therapeutics
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BIPOC Support Group Meeting
ZOOM: November 14, 2021; 4 - 5:30 PM Eastern
Join our facilitators for a fun and engaging open discussion geared toward understanding the activities and discussions you want to see in the future. Please email your questions and discussion ideas to our group facilitators before the meeting at CL382p@gmail.com.
After registering, you will receive a confirmation email containing information about joining the meeting. We look forward to seeing you there!
Please register in advance for this meeting.
REGISTER
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Connective Tissue Disease, Sarcoidosis, and Interstitial Lung Disease
ILD Day video, recorded September 15, 2021
Individuals who have systemic scleroderma are at risk for interstitial lung disease (ILD). To learn more about the disease, watch the ILD Day educational webinar now available on YouTube.
WATCH
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Sunday Sitdown
FACEBOOK LIVE: October 31, 2021; 1 PM Eastern
Join the Ohio Chapter for Sunday Sitdowns on the last Sunday of every month at 1 p.m. Eastern Time via Facebook Live. This is a time to connect with others who live with the challenges caused by scleroderma.
Please note, given the open, unsecure nature of Facebook, do not share private, personal information during this conversation.
WATCH
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National Family Caregivers Month
November is also National Family Caregivers Month, organized by the Caregiver Action Network.
The 2021 theme, #CaregiverAnd, encourages you, the family caregiver, to celebrate the identities and passions that enrich your life. Far too often your role as a family caregiver overshadows your identity and emphasizes the care you provide for your loved one. Being a family caregiver is incredibly important, but it is critical not to lose sight of who you are. Your sense of self makes your life complete. This is an essential component of self-care that can ultimately prevent caregiver burnout and depression. #CaregiverAnd shifts that focus by highlighting the other roles, activities, and passions that make up your life.
#CAREGIVERAND
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Disclaimer: The Scleroderma Foundation in no way
endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is
provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.
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