BIPOC Support Group Meeting

ZOOM: November 14, 2021; 4 - 5 PM Eastern

Join our facilitators for a fun and engaging open discussion geared toward understanding the activities and discussions you want to see in the future. 

After registering, you will receive a confirmation email containing information about joining the meeting. We look forward to seeing you there! 

Please register in advance for this meeting.

REGISTER

Scleroderma Interprofessional Education: A Patient-Centric, Collaborative Approach

VIDEO: Recorded July 2021

Watch this presentation from the 2021 virtual National Scleroderma Conference facilitated by patient advocate Amy Gietzen, featuring Hannah Bowen, BS, Jeffrey Brewer, PharmD, BCACP, FASHP, Heather Frenz, Linda Meenan, MA, Peter Meenan, PhD, Michelle Morgan, MS, RDN, CDN, Steve Rosenblum, and Lee Shapiro, MD. 

The collaborating organizations are Albany College of Pharmacy and Health Sciences, Albany Medical College, Russell Sage College: School of Health Sciences, and Steffens Scleroderma Foundation. 

WATCH

Parents & Guardians of Youth with Scleroderma

ZOOM: October 23, 2021; 11 a.m. - 3 p.m. Eastern

The 2021 Kids Get Scleroderma, Too! conference (KGS2) is geared toward educating parents and guardians with up-to-date information to help them best navigate their child’s disease. To relieve the pressure of yet another virtual meeting for children, youth are not the primary participants this year.

This conference is free. The one-day, virtual event takes place Saturday, October 23 from 11 a.m. to 3 p.m. Eastern via Zoom. Don't wait until tomorrow. Register tonight, Friday, to ensure your place online.

REGISTER TODAY

The 20%: A Virtual Support Group for Males Living with Scleroderma

TOPIC: I am Tired of Fatigue
ZOOM: October 27, 2021; 7 - 8 PM Eastern

To support the men with scleroderma in our community, the Michigan Chapter is hosting monthly virtual support groups. Join the October group on the 27th from 7 to 8 PM Eastern for a discussion of scleroderma-related fatigue and tips to cope and overcome it. There will be time at the end for questions and answers. Register now and find support and hope in the community.

REGISTER

SPIN-Self Feasibility Study

Participate in a self-management program developed by SPIN (the Scleroderma Patient-centered Intervention Network). If you are interested in joining the eight video-conferencing sessions to learn problem-solving and practical skills to help manage your scleroderma symptoms, click the link below to access the participant consent form.

CONSENT FORM

myPHteam

Unfortunately, fatigue and pulmonary hypertension often go hand-in-hand. How do you cope on a low energy day? Share in the discussion.

myPHteam

Debunking the Three Biggest Myths About Disability Benefits & Work

WEBINAR: October 27, 2021; 3 - 4:30 p.m. Eastern

If you receive Social Security disability benefits (SSDI or SSI) and you want to work, mark your calendars for October 27 at 3 p.m. Eastern to attend the October Work Incentive Seminar Event (WISE) webinar. Learn the truth about the three biggest myths surrounding disability benefits and work. Get info that will help you make a decision that work may be right for you, to look for a job and successfully transition to work.

REGISTER

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