Kids Get Scleroderma, Too! Virtual Paint Party

ZOOM: October 23, 2021; 3:30 p.m. - 5 p.m. Eastern

Join us for this very special virtual paint party. We know that the last 18 months have been difficult and seeing your friends hasn’t been easy. Grab your brush and get ready for this fun and interactive Halloween-themed paint party. Catch up with your friends and learn from two very special guests: Maggie Sepkowitz, LCSW, and Jill Blitz, PT, DPT, ATP.

The Virtual Paint Party is for youth who have scleroderma, ages 10 to 17, and their siblings. The event is free and open to international participants. Once registered, a paint kit with all necessary supplies will be mailed to your home. Max limit of two paint kits per household.

The registration deadline is October 13. Space is limited, so sign up today!

If you have questions about the virtual paint party, please contact SFinfo@scleroderma.org.

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Kids Get Scleroderma, Too! Virtual Conference for Parents & Guardians

ZOOM: October 23, 2021; 11 a.m. - 3 p.m. Eastern

The 2021 Kids Get Scleroderma, Too! conference (KGS2) is geared toward educating parents and guardians with up-to-date information to help them best navigate their child’s disease. To relieve the pressure of yet another virtual meeting for children, youth are not the primary participants this year.

This conference is free. The one-day, virtual event takes place Saturday, October 23 from 11 a.m. to 3 p.m. Eastern via Zoom.

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Parents of Children with Scleroderma October Support Group

ZOOM: October 6, 7:30 - 9 p.m. Eastern
TOPIC: Self-Care for Caregivers

In the midst of caring for their loved one, caregivers can forget to put their own needs first. But when the caregiver is rested, healthy, and happy, everyone benefits. Join an online support group October 6 from 7:30 to 9 p.m. Eastern to find self-care tips for caregivers. The group starts with welcome remarks and an icebreaker, moves on to an educational session with helpful tips, and ends with a closing mindful moment. Register now and find support and hope in the community.

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The National Peer Review Research Grant Program

PODCAST: Carol Feghali-Bostwick, Ph.D., recorded September 25, 2021

Listen to a podcast featuring Carol Feghali-Bostwick, Ph.D., discuss the Scleroderma Foundation's peer review research grant program. In addition to being a scleroderma researcher, Dr. Feghali-Bostwick is Vice Chair of the Scleroderma Foundation and is the SmartState and Kitty Trask Holt Endowed Chair and Professor of Medicine at the Medical University of South Carolina (MUSC).

LISTEN

Predicting Progression in Scleroderma

VIDEO: Recorded July 2021

Watch Laura K. Hummers, MD, ScM, Johns Hopkins Scleroderma Center, present information regarding how you and your physician can better predict your disease course and how screening tools are used to monitor disease.

WATCH

Calling All Artists!

Are you an artist? If so, we want to feature your artwork in a new initiative the Foundation is implementing to grow engagement with our supporters. The theme of this year's project is "My Journey." Artwork should reflect this theme.

If you would like your artwork to be considered, please email Lauren Galvan at LGalvan@scleroderma.org and include 1) your name and chapter affiliation, 2) images or videos of your artwork (we will consider all forms of artwork), 3) a photo of you, and 4) information about your journey with scleroderma or how you've been affected by the disease.

By submitting your artwork and information, you grant permission to the Scleroderma Foundation to use your art and information in our communications. You will be notified if your artwork is chosen. We are excited to see your creativity!

10 Myths About Raynaud's Phenomenon - Get the Facts for a Warmer, More Comfortable Life

WEBINAR: October 5, 2021; 1:30 p.m. - 2:15 p.m

October is Raynaud's Awareness Month. To increase understanding of the disease, which affects 5 to 10% of the U.S. population, the Raynaud's Association, in collaboration with NeedyMeds, will host a webinar on myths about Raynaud's Phenomenon. The webinar will include resources for support and education to those living with Raynaud's to lead a fuller life.

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Building the Bridge Summit: Closing the Literacy Gap

VIRTUAL: Sat., Oct. 9, 2021; 9 a.m. - 5 p.m. Eastern
Presented by Black Health Matters

Join Black Health Matters for a glorious day of renewal as leading clinicians and advocates convene to inspire you to get healthy and stay healthy. Enjoy information on conditions that impact African Americans: Clinical Trials, COVID Vax & Variants, Skin Discoloration, and much more.

Building the Bridge is the newest offering in the Black Health Matters summit series. Summits are designed to be interactive forums where experts share knowledge and people ask questions openly.

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Shop Online, Raise Funds to Fight Scleroderma

AmazonSmile lets you shop on Amazon.com while donating a portion of the purchase price to the Scleroderma Foundation. Go to smile.amazon.com TODAY and follow the prompts to select the Scleroderma Foundation as your AmazonSmile charity. Be sure to shop from the URL smile.amazon.com when you make purchases so Amazon knows you would like to support the Foundation.

ClinicalTrials.gov

You can track clinical trials for scleroderma, systemic sclerosis (SSc), pulmonary hypertension, and more at ClinicalTrials.gov. This robust website is published and maintained by the National Institutes of Health, U.S. National Library of Medicine. Search options include trials that are recruiting, country, state, and more. States highlighted in red in the map (left) have the most scleroderma-related trials.

You can also find information about scleroderma-related clinical trials on scleroderma.org/centers, where designated "Scleroderma Research & Treatment Centers" list the trials taking place at their institutions.

CLINICAL TRIALS

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