BIPOC Virtual Support Group

ZOOM: September 12, 2021; 4 - 5:30 p.m. Eastern Time
TOPIC: Exercising at Home

The September BIPOC virtual support group meeting features Delaney Duchek, BASc, an MSc student and research assistant in the Health & Wellness Lab, Faculty of Kinesiology at the University of Calgary in Canada. Delaney began working with people living with scleroderma through SPIN (Scleroderma Patient-centered Intervention Network), and more specifically, through the SPIN-CHAT Program during COVID-19. She taught "Exercising at Home" sessions and is excited to adapt these sessions to bring exercising at home to the Scleroderma Foundation BIPOC Support Group.

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COVID-19 Vaccines, New Variants, and Research Findings

VIDEO: Recorded August 1, 2021

Daniel Furst, M.D., addresses research findings related to COVID-19 vaccines and the new variants of the COVID-19 virus. Produced by the Southern California Chapter.

VIDEO 

Mental Health Focus Group

The Scleroderma Foundation will conduct a series of focus groups beginning this fall lead by the Gingsberg Center at the University of Michigan. The goal is to learn the current mental health needs of those persons living with scleroderma and their caregivers.

We are looking for individuals living with scleroderma and caregivers of persons living with scleroderma ages 18 years and older. Participants will be asked to answer questions about the current mental health needs in their lives. They’ll also complete a pre- and post-group interview/questionnaire. All interview and focus group content is confidential.

The groups will be conducted virtually and will be 30-40 minutes long. Individual interviews are also available for those unable to attend a larger focus group session.

Interested in participating? Please contact Laura Dyas at ldyas@scleroderma.org by September 6, 2021.

Sunday Sitdown

FACEBOOK LIVE: August 29, 1 p.m. Eastern Time (12 p.m. CT, 11 a.m. MT, 10 a.m. PT)

Join the Ohio Chapter for Sunday Sitdowns on the last Sunday of every month at 1 p.m. Eastern Time via Facebook Live. This is a time to connect with others who live with the challenges caused by scleroderma.

Please note, given the open, unsecure nature of Facebook, do not share private, personal information during this conversation.

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SYNC Meet-Up

ZOOM: Friday, September 10 at 7:00 p.m. Eastern Time

SYNC (Scleroderma Young Adults Needing Connection) invites you to join their September 12 Zoom meeting. This meeting will be a general discussion among young adults between the ages of 18 and 42, who are looking to connect with other individuals affected by scleroderma. For questions, please email Amy Gietzen, agietzen@scleroderma.org or Natalie Puccio at nataliepuccio18@gmail.com.

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Kids Get Scleroderma, Too! Save the Date

VIRTUAL: October 23, 2021

The 2021 Kids Get Scleroderma, Too! (KGS2) conference is a one-day event on October 23, 2021. The KGS2 conference focuses on education related to both the localized and systemic forms of scleroderma. Parents and guardians will have specialized education to help their journey in raising a child with scleroderma.

To receive email updates when registration, scholarship, and programming information are available, please enter your email address here.

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