Harry Karmouty-Quintana, Ph.D.

2021 Research Grant Awards

The Scleroderma Foundation awards research grants in two categories, Established Investigator, to provide an opportunity to pursue innovative ideas, and New Investigator, to provide funding to gather sufficient data to warrant funding on a larger scale from the National Institutes of Health.

One of four Established Investigator grants was awarded to Harry Karmouty-Quintana, Ph.D., University of Texas, Health Science Center at Houston. His project is titled "The Role of SIX1 in SSc-ILD." Learn more about this project and the other 2021 research grant recipients on the Foundation's website.

RESEARCH

BIPOC Virtual Scleroderma Support Group

ZOOM: Sunday, May 2, 2021, 4 p.m. Eastern Time

Hear guest speakers Micaela Bayard, M.D., and Kirk Campbell, M.D., discuss "Advancing Health Equity: A Community Conversation for Rare Diseases."

Micaela Bayard, M.D., is a rheumatologist in Queens, N.Y., and an Assistant Professor of Medicine at the Icahn School of Medicine at Mount Sinai. Dr. Bayard’s clinical practice encompasses care for a broad spectrum of autoimmune and connective tissue diseases. She is also an educator at the Icahn School of Medicine at Mount Sinai, where she is course director for the Musculoskeletal Pathophysiology Course and a small group leader for the Art of Science and Medicine.

Kirk Campbell, M.D., is an Associate Professor of Medicine, Vice Chair for Diversity and Inclusion and Director of the Nephrology Fellowship Program at the Icahn School of Medicine at Mount Sinai. In addition to treating patients with kidney disease, Dr. Campbell leads an NIH-funded research program focused on developing new therapeutic interventions for proteinuric diseases.

The Foundation started the BIPOC Virtual Support Group to address the needs of Black, Indigenous, and People of Color affected by scleroderma. Co-Facilitators are: Marilyn Sibley, Erion Moore, Demi Montgomery, Jacob Vidal Davila, Demetra Newton, and Sy Fuller. If you have any questions regarding the BIPOC group, please send an email to SFinfo@scleroderma.org.

REGISTER

Meet the Experts: Going Virtual with Patients and Families

ZOOM: Saturday, May 15, 2021, 10 a.m. - 1:30 p.m. Eastern Time

The American Thoracic Society (ATS) Public Advisory Roundtable (PAR) is pleased to invite you to its 15th annual free patient and family forum. This year's talk will focus on patients and families and how they navigate health care access in a post-pandemic world. The panel includes Jaspal Singh, M.D., Samantha Connolly, Ph.D., Justin Ortiz, M.D., Neeta Thakur, M.D., Charles A. Powell, M.D., and DorAnne Donesky, Ph.D. This live virtual patient education event is being held in conjunction with the ATS 2021 International Conference. Morning talks will go from 10 a.m. to 12 p.m. Eastern Time. Afternoon breakouts will go from 12 p.m. to 1:30 p.m. Eastern Time.

REGISTER

Showcase Your Business at Conference

Do you work for a company or nonprofit striving to help people living with scleroderma? You're invited to showcase your organization's programs, products, or services at the 2021 National Scleroderma Conference, "Connect and Thrive Together." This all-virtual event is July 17-18, 2021, attracting hundreds of people living with scleroderma, their family members and caregivers, and the world's leading scleroderma healthcare professionals and researchers. Visit the exhibitor page on the Conference website today to learn how to claim your virtual booth in the exhibit hall!

EXHIBITORS

COVID‑19 Information & Recommendations

Updated April 28, 2021

Please note an update to vaccine guidance. You should not receive any other vaccine 14 days prior to receiving your first or second dose of COVID-19 vaccine.

The American College of Rheumatology released clinical guidance on the COVID-19 vaccines. This information is available on the ACR website and has been added to the Foundation's website. Additional information and frequently asked questions regarding the COVID-19 vaccines have been addressed by the Scleroderma Foundation's Medical & Scientific Advisory Board, to be used in consultation with your rheumatologist or other health care provider.

These guidelines, along with more information and recommendations for individuals affected by scleroderma about COVID-19 are posted at scleroderma.org/covid19. Please check this page from time to time for updates.

COVID‑19

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