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eLetter #902 | January 29, 2021 |
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Parents of Children with Scleroderma February Support Group
VIRTUAL: February 3, 7:30-9:00 p.m. Eastern Time Managing the Needs of All Those in The Household
Scleroderma affects your child, but it can also impact the whole family including you, your spouse, other children, and relatives. Luckily, you’re not alone. Join us for an online support group on February 3 from 7:30 to 9 p.m. Eastern Time to find strength and tips to support the whole household. We’ll start with welcome remarks and an opening icebreaker, then we’ll move on to an educational session with helpful tips, and end with a closing mindful moment. Register now and find support and hope in the community.
REGISTER
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Sunday Sitdown
FACEBOOK LIVE: January 31, 1 p.m. Eastern Time (12 p.m. CT, 11 a.m. MT, 10 a.m. PT)
Join the Ohio Chapter for Sunday Sitdowns on the last Sunday of every month at 1 p.m. Eastern Time via Facebook Live. This is a time to connect with others who live with the challenges caused by scleroderma.
Please note, given the open, unsecure nature of Facebook, do not share private, personal information during this conversation.
WATCH
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COVID-19 & Rheumatic Disease Study
Our friends at Creakyjoints.org have reported on a new study published in The Lancet medical journal that indicates COVID-19 disease outcomes in people with rheumatic disease are improving over time. More research is needed and researchers stress that it's still necessary for people with rheumatic diseases to protect themselves against contracting COVID-19.
READ
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Portraits of Resilience
ONLINE February, 2021, 4-5 p.m. Eastern Time
What does resilience mean to you? Explore that question at “Portraits of Resilience," a live virtual story session February 11, 2021, hosted by Inspire and Health Story Collaborative, featuring patient advocates Estela Lugo and Chris Anselmo.
REGISTER
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COVID‑19 Information & Recommendations
Updated January 8, 2021
Information and frequently asked questions regarding the COVID-19 vaccines have been addressed by the Scleroderma Foundation's Medical & Scientific Advisory Board, to be used in consultation with your rheumatologist or other health care provider.
These guidelines, along with more information and recommendations for individuals affected by scleroderma about COVID-19 are posted at scleroderma.org/covid19. Please check this page from time to time for updates.
COVID‑19
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Becoming an Empowered Patient
Join Andrea Baer, Executive Director of Mended Hearts, as she walks you through how to become an empowered patient. Learn how advocating for yourself and being an active part of your own healthcare team can improve your health. Register today as space is limited!
REGISTER
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Disclaimer: The Scleroderma Foundation in no way
endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is
provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.
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