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| eLetter #901 | January 22, 2021 |
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Sign Up for 2021 Conference eAlerts
July 17-28, 2021: Virtual National Conference
The 2021 National Patient Education Conference will take place virtually to protect the health of individuals who have scleroderma and all who participate. The two days of workshops, panels, and speakers are Saturday and Sunday, July 17 and 18. Details regarding registration, workshops and speakers are being finalized. Stay in the know by subscribing to Conference eAlerts.
CONFERENCE eALERTS
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During Pandemic, Critical to Work with Doctor to Manage Lung Disease Symptoms
Three national lung health organizations highlight the need for individuals with chronic lung disease to continue working closely with their health care provider to manage their health through medications, preventative care, and recommended screenings.
American Thoracic Society, American Lung Association, and American College of Chest Physicians issued a press release together on January 12 and stated "Our organizations urge patients to work closely with their health care provider to manage their symptoms and get tested for COVID-19 as recommended by their doctors and the Centers for Disease Control and Prevention (CDC)."
READ
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COVID‑19 Information & Recommendations
Updated January 8, 2021
Information and frequently asked questions regarding the COVID-19 vaccines have been addressed by the Scleroderma Foundation's Medical & Scientific Advisory Board, to be used in consultation with your rheumatologist or other health care provider.
These guidelines, along with more information and recommendations for individuals affected by scleroderma about COVID-19 are posted at scleroderma.org/covid19. Please check this page from time to time for updates.
COVID‑19
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Caregivers of Children, Mental Health Access
Two outpatient therapists at Children's Friend are studying caregivers' experiences in accessing mental health treatment for their children. Caregivers include biological parents, adoptive parents, foster parents, stepparents, and/or guardians of children under the age of 18 living anywhere in the United States. Please consider completing their anonymous online survey (10-20 minutes) to provide valuable feedback to assist mental health providers in tailoring services to better meet the needs of families.
English: https://www.surveymonkey.com/r/PQFSMVV
Español: https://es.surveymonkey.com/r/2DXD5TX
Please direct questions to Kim Hager, L.I.C.S.W., khager@childrensfriend.org or Maria Martinez Calderon, L.M.H.C., mmartinez@childrensfriend.org.
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Scleroderma Caregivers & Mental Health
VIDEO
Are you a caregiver for a loved one with scleroderma? We know the emotional challenges you may face, and we’re here to help. Watch our January webinar to learn about support services and resources to help you succeed.
Featuring Danielle Rice, a therapist and a PhD candidate at the Department of Psychology at McGill University, Montreal, Quebec.
WATCH
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Services & Supports
WEBINAR: January 27, 2021; 3 p.m. Eastern
How can a Ticket to Work service provider help you reach your work goals? Find out during this month’s Work Incentive Seminar Event (WISE) webinar. ChooseWork will talk about the free services and supports available to eligible people with disabilities. Connect with a service provider who can help you on the path to financial independence through work.
WEBINAR
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Disclaimer: The Scleroderma Foundation in no way
endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is
provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.
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