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| eLetter #900 | January 15, 2021 |
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COVID‑19 Information & Recommendations
Updated January 8, 2021
Guidance on the COVID-19 vaccines has been issued by the Scleroderma Foundation's Medical & Scientific Advisory Board, to be used in consultation with your rheumatologist or other health care provider.
These guidelines, along with more information and recommendations for individuals affected by scleroderma about COVID-19 are posted at scleroderma.org/covid19. Please check this page from time to time for updates.
COVID‑19
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2021 National Conference Goes Virtual
Save the Date: July 17-28, 2021
We're excited to announce that the 2021 National Patient Education Conference will take place virtually. The conference will be two days of workshops, panels, and speakers, July 17 and 18, Saturday and Sunday.
Details regarding workshop, speakers, and registration, and the virtual platform will be posted as they are finalized.
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Scleroderma Caregivers & Mental Health
VIDEO
Are you a caregiver for a loved one with scleroderma? We know the emotional challenges you may face, and we’re here to help. Watch our January webinar to learn about support services and resources to help you succeed.
Featuring Danielle Rice, a therapist and a PhD candidate at the Department of Psychology at McGill University, Montreal, Quebec.
READ
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Mental Health Survey
You can play an important part in addressing the mental health needs of the scleroderma community by completing a brief survey (seven minutes) created in partnership with the Foundation's Michigan Chapter and the Ginsberg Center at the University of Michigan.
Today, January 15, 2021, is the last day to respond to the survey. Anyone 18 years and older, who is diagnosed with scleroderma may participate. If you have any questions about the survey, please contact Laura Dyas: LDyas@scleroderma.org.
SURVEY
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myPHteam
Some people with pulmonary hypertension also have chronic obstructive pulmonary disease (COPD). Managing two chronic illnesses can be extremely hard! Join the discussion about this topic among others facing similar challenges:
myPHteam
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Services & Supports
WEBINAR: January 27, 2021; 3 p.m. Eastern
How can a Ticket to Work service provider help you reach your work goals? Find out during this month’s Work Incentive Seminar Event (WISE) webinar. ChooseWork will talk about the free services and supports available to eligible people with disabilities. Connect with a service provider who can help you on the path to financial independence through work.
WEBINAR
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Disclaimer: The Scleroderma Foundation in no way
endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is
provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.
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