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| eLetter #737 | November 17, 2017 |
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Thanksgiving Holiday Observance
In observance of the Thanksgiving holiday, the Scleroderma Foundation national office will be closed on Thanksgiving Day, November 23, and Friday the 24th of November. During this time, calls to the info line, 800-722-4673, will go to voice mail.
scleroderma.org
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Video: Drugs that Cause Scleroderma/Morphea
In this video recorded at the Scleroderma Foundation's 2017 Patient Education Conference, Arnold Postlethwaite, M.D., discusses medications that have been reported to trigger onset of classic systemic sclerosis or localized scleroderma (morphea). Anticancer (chemotherapy) drugs, the largest class, are discussed as they are of special interest to systemic sclerosis patients. Other types of drugs reported to induce scleroderma such as migraine headaches drugs, vitamin B1 and B12 injections, and oral contraceptive agents are also be discussed.
watch video
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Scleroderma Researcher Profile
Monica Mukherjee, M.D., M.P.H., of Johns Hopkins University School of Medicine, received a 2017 research grant from the Scleroderma Foundation to study better methods for detecting and predicting heart disease, such as pulmonary hypertension and right-side heart failure. If successful, this technique could lead to improved mortality rates.
"Speckle tracking echocardiography is a noninvasive tool that helps with early detection of scleroderma heart disease," said Dr. Mukherjee.
follow Dr. Mukherjee on Twitter
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Doctor of the Year – Maureen Mayes, M.D., M.P.H.
World-renowned scleroderma researcher and clinician, Maureen D. Mayes, M.D., M.P.H., of the University of Texas Health Science Center at Houston, received the 2017 Doctor of the Year Award from the Scleroderma Foundation in recognition of her tireless work in patient education. Dr. Mayes is professor of rheumatology and clinical immuno-genetics at the McGovern Medical School and founder and director of its Scleroderma Clinical and Research Program. She has published over 200 articles and reviews on the genetics of scleroderma and clinical treatment trials. Many lay members of the scleroderma community know her as the author of the excellent patient resource book entitled, Scleroderma: A Guide for Patients and Families.
read more
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ATS Patient Voices 6
Download a copy of Patient Voices 6 from the American Thoracic Society (ATS) Public Advisory Roundtable (PAR). This publication shares stories from nine patients, with different pulmonary disorders, each of whom presented at the ATS 2017 International Conference. The introduction was written by the Scleroderma Foundation's Kerri Connolly, who is also chair of the ATS PAR.
download Patient Voices 6
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Open Enrollment Ends Dec. 15 for 2018 Health Insurance Under ACA
If you need health insurance for 2018 via the individual marketplace of the Affordable Care Act, the open enrollment period is now through December 15. Anyone who doesn't have coverage through a job, Medicare, Medicaid, the Children's Health Insurance Plan (CHIP), or other qualifying coverage is eligible to apply. Visit the HealthCare.gov website to learn more and sign up.
HealthCare.gov
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Key Hemodynamic Differences Noted With Scleroderma-Associated PAH vs Idiopathic PAH
Read this report on a study presented at the recent American College of Rheumatology annual meeting (November 2017) regarding findings that patients with systemic sclerosis-associated pulmonary arterial hypertension (SSc-PAH) display important differences compared with patients who have idiopathic PAH (iPAH).
read more
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Grassroots Advocacy Training - Recording
Public policy advocacy on behalf of people affected by scleroderma at both the state and federal level is crucial to making a difference in their lives. The Scleroderma Foundation now offers monthly grassroots advocacy training webinars. Watch the recording of webinar one, "Grassroots Advocacy Overview," from October 23, 2017.
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2018 National Patient Education Conference
Sign up for e-Alerts to stay up to date on the 2018 National Patient Education Conference in Philadelphia, Pennsylvania, July 27-29.
sign up for e-alerts
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Giving Tuesday is Nov. 28
#GivingTuesday is Nov. 28. Download the #unselfie sign, write your reason for giving to #curescleroderma, take a pic and post on Facebook and Twitter!
download the unselfie
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Disclaimer: The Scleroderma Foundation in no way
endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is
provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.
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