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National Scleroderma Foundation Logo 2022 eletter

 

eLetter #727 | September 8, 2017  

Hundreds of Diseases, One Voice #RDAM

September is Rheumatic Disease Awareness Month

Terry Bradshaw videoSeptember 2017 marks the second annual Rheumatic Disease Awareness Month (RDAM), sponsored by the American College of Rheumatology (ACR) and its national public awareness campaign, Simple Tasks.  RDAM is an effort to increase public understanding and awareness of the symptoms, risk factors, treatment options, personal and economic impact, and lifestyle and healthcare challenges associated with rheumatic diseases. 

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Smoking Marijuana and the Lungs

ats-logo.gifRead this informative article by the American Thoracic Society about the risk to lung health from smoking marijuana.

Flavia CastelinoMassachusetts General Hospital Expands Scleroderma Program to Waltham, Mass.

The Scleroderma Program at Massachusetts General Hospital in Boston has expanded operations to its Mass General Waltham facility under the direction of Dr. Flavia Castelino.

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Journal of Scleroderma and Related Disorders

JSRD logoFollow the Journal of Scleroderma and Related Disorders at their website and on Twitter @JScleroderma to stay up to date with critical research news. 

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Outstanding Education Award - Tri-State Chapter

Tri-State AwardThe Tri-State chapter (New York, Connecticut, New Jersey) was recognized as Outstanding Education Program award winner at the 2017 National Patient Education Conference.  Tri-State hosted an exceptional educational event, Kids Gets Scleroderma Too, last year that drew physicians from five states and 125 participants from ten states.  The Chapter partnered with three pediatric rheumatologists–each a recipient of a research grant from the foundation.  The conference offered programming for siblings, for children ages 5-12, for teenagers, and for adults. 

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Make a Plan to Amplify Your Impact: Estate and Planned Giving

planned giving coupleIf you would like to extend your support of the Scleroderma Foundation to make a lasting impact, there are several gift arrangements to choose from.  Whether you would like to put your donation to work today or benefit us after your lifetime, you can find a charitable plan that lets you provide for your family and support the Scleroderma Foundation.

Contact Deborah Dillon Pearce at dpearce@scleroderma.org for more information about this kind of gift to the Foundation.

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Disclaimer: The National Scleroderma Foundation in no way endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.

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