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eLetter #727 | September 8, 2017 |
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Hundreds of Diseases, One Voice #RDAM
September is Rheumatic Disease Awareness Month
September
2017 marks the second annual Rheumatic Disease Awareness Month (RDAM),
sponsored by the American College of Rheumatology (ACR) and its national
public awareness campaign, Simple Tasks. RDAM is an effort to increase
public understanding and awareness of the
symptoms, risk factors, treatment options, personal and economic
impact, and lifestyle and healthcare challenges associated with
rheumatic diseases.
Read more
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Smoking Marijuana and the Lungs
Read this informative article by the American Thoracic Society about the risk to lung health from smoking marijuana.
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Massachusetts General Hospital Expands Scleroderma Program to Waltham, Mass.
The
Scleroderma Program at Massachusetts General Hospital in Boston has expanded operations to its
Mass General Waltham facility under the direction of Dr. Flavia Castelino.
Read more
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Journal of Scleroderma and Related Disorders
Follow
the Journal of Scleroderma and Related Disorders at their
website and on Twitter @JScleroderma to stay up to date with critical research news.
Read more
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Outstanding Education Award - Tri-State Chapter
The
Tri-State chapter (New York, Connecticut, New Jersey) was
recognized as Outstanding Education Program award winner at the 2017
National Patient Education Conference. Tri-State hosted an exceptional
educational event, Kids Gets Scleroderma Too, last
year that drew physicians from five states and 125 participants from
ten states. The Chapter partnered with three pediatric
rheumatologists–each a recipient of a research grant from the
foundation. The conference offered programming for siblings, for
children
ages 5-12, for teenagers, and for adults.
Learn more
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Make a Plan to Amplify Your Impact: Estate and Planned Giving
If
you would like to extend your support of the Scleroderma Foundation to
make a lasting impact, there are several gift arrangements to choose
from. Whether you would like to put your donation to work today or
benefit us after your lifetime, you can find a charitable
plan that lets you provide for your family and support the Scleroderma
Foundation.
Contact Deborah Dillon Pearce at
dpearce@scleroderma.org for more information about this kind of gift to the Foundation.
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Disclaimer: The National Scleroderma Foundation in no way endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.
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