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eLetter #725 | August 25, 2017 |
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Preparing for and tracking the outcomes from medical appointments for pulmonary hypertension is challenging and requires a well-organized approach. The Pulmonary Hypertension
Association created an Empowered Patient Online
Toolkit that gives you what you need to make the most of every visit and to keep yourself organized.
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"You're Asking ME??!?"
By: Childhood Arthritis and Rheumatology Research Alliance
The Childhood Arthritis and Rheumatology Research Alliance (CARRA) published a helpful article about balancing traditional and complementary therapies.
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Ticket to Work & Reasonable Accommodations
Disabilities don’t necessarily mean you can’t lead a productive life. Reasonable
Accommodations in the workplace are part of the American with Disabilities Act to protect people who have disabilities on the job. Ticket to Work
is a program of the Social Security Administration that allows people
who receive SSI or
SSDI to work and earn a paycheck. Follow the link below to read this
article published by the Social Security Administration to learn the
facts.
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The Yoga Center, Reno, NV
Conference Exhibitor/Presenter
The Yoga Center in Reno, Nevada presented
at the 2017 Patient Education Conference in Arizona. They offer yoga
designed specifically for people with scleroderma. Even if you don’t
live near Reno, you can still benefit from their
programs through an instructional DVD. Follow the link below to learn
more.
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Tribute and Memorial Gifts
You
can honor a loved one who has scleroderma by making a tribute or
memorial donation. Visit the Scleroderma Foundation website and click
“donate now”. The donation form gives you the option
to indicate whether it’s a tribute or memorial gift, and
to enter the honoree’s name, plus the name and address of the person to
notify that the gift has been made. You, too, will receive an email
receipt. Your gift creates hope for everyone fighting scleroderma
by helping to fund the largest peer-reviewed research
program for scleroderma in the country.
Make your tribute or memorial
gift today.
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Disclaimer: The Scleroderma Foundation in no way
endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is
provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.
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