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eLetter #723 | August 11, 2017 |
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Scleroderma and Your Gut Feelings: Managing GI Involvement
Webinar, Wednesday, August 23, 2017; 7 p.m. - 8 p.m. Eastern
Join us for a free webinar in the comfort of your
own home hosted by Dr. Dinesh Khanna from the University of Michigan on
Managing GI Involvement. There is no sign-up necessary. Join the meeting here just prior
to the start time.
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15th International Workshop on Scleroderma Research
The abstracts from the 15th International Workshop on Scleroderma
Research are published free in the Journal of Scleroderma and Related
Disease.
Read more
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Capitol Hill Day Rescheduled for Spring 2018
Based on current legislative priorities in
Washington, DC and the realities of introducing a bill into Congress in
the near future, Capitol Hill Day 2017 (originally scheduled for October 25) has been rescheduled for Spring 2018.
Advocacy work to advance our cause will continue this fall and winter through grassroots efforts in congressional districts,
advocacy alerts and training opportunities for current and new
scleroderma advocates. There was an outstanding workshop at the recent
patient education conference focused specifically on how to utilize
one’s story as a powerfully effective tool to share
with legislators in hopes that the elected official will co-sponsor a
bill. That process is even more effective when there is a bill before
Congress to co-sponsor! Training opportunities will be announced in
future e-newsletters, and the date for Capitol Hill
Day 2018 will be announced as soon as it is confirmed.
Read more
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Discovery Documentary: First in Human
First in Human is a three-part documentary
capturing the real-life experiences of doctors, researchers, staff,
patients and their caregivers, at the NIH Clinical Center.* The
documentary airs on three sequential Thursday evenings
on August 10, 17, and 24, at 9:00 p.m. ET/PT on Discovery.
Read more
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Holistic Approach Helps Patients Engage in Care
Article from the Pulmonary Hypertension Association
about patient engagement in their own care, by Phyllis Hanlon,
Contributing Writer.
Read more
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Clinical Trial News |
Corbus Pharmaceuticals issued a press release with
an update on trials for Anabasum, their synthetic oral
endocannabinoid-mimetic drug designed to resolve chronic inflammation
and halt fibrosis. Update includes Data from Phase 2 open-label
extension study of anabasum for the treatment of systemic sclerosis
expected in Q4 2017. And, Phase 3 study of anabasum for the treatment
of system sclerosis expected to commence in Q4 2017.
Read more
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Disclaimer: The Scleroderma Foundation in no way
endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is
provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.
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