Conference Registration Now Open! In
a little over 150 days, the foundation will hold the 19th renewal of
its National Patient Education Conference deep in the Arizona desert in
Chandler, Arizona. Registration for the
conference, to be held July 21-23, is now open and those interested are encouraged to sign up today as
space is limited. The 2016 event drew a
record crowd and this summer’s festivities are sure to even raise the bar higher. Preparations are well underway for a
comprehensive program featuring an esteemed lineup of speakers from throughout
North America. In addition to sessions, there’s an awards luncheon, dinner with
entertainment as well as a comprehensive array of exhibitiors.
Attention Support Group Leaders Past and Present: Take the Survey
Researches north of the border are conducting the second phase of a
survey geared towards scleroderma support group leaders. Led by Dr. Brett Thombs, a group at McGill
University’s Jewish General Hospital is looking for patients who have or are
leading a support group to complete the anonymous survey. The group greatly values for feedback as you
assess your experiences as a support group leader as it will help mold a curriculum
for prospective leaders across the United States and Canada. Follow the link to complete.
European Researchers Unveil Study
Scleroderma European Observational Study was conducted by a group of renowned
scientists throughout the continent. The team focused on the success rates of different treatment approaches while
studying a wide and diverse group of patients with varying degrees of
scleroderma. Here's their comprehensive findings.
Disclaimer: The Scleroderma Foundation in no way
endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is
provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.
The Scleroderma Foundation is a qualified national nonprofit operating under 501(c)(3) status. The foundation’s federal tax identification number is 52-1375827. Our primary goal is to raise funds for our three-fold mission of support, education and research. The foundation has 20 active chapters and 160 support groups across the country.