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eLetter #691 | December 23, 2016 |
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Happy Holidays to All of You
From our families to yours. We appreciate all of your support throughout the year and hope your holidays are filled with happiness and joy.
Holiday Office Hours
- Friday, December 23: National Office will close at 5 p.m. eastern.
- Monday, December 26: Office closed in observance of Christmas
- Friday, December 30: National Office will close at 5 p.m. eastern.
- Monday, January 2, 2017 - Office closed in observance of New Year's Day
- Tuesday, January 3, 2017: Regular Office Hours 8:30 a.m. to 5 p.m. eastern
If you need assistance or would like to make a holiday gift, please call during office hours. Otherwise, you can donate online through our website 24/7. Please visit national.scleroderma.org/eoy
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Give the Gift of Membership
This
year, give a gift to someone of an annual membership to the Scleroderma
Foundation and support our organization and its important mission to
help support, educate and advocate for people living with scleroderma.
For $25 ($35 for international), you will receive:
- A subscription to the award-winning quarterly magazine "Scleroderma Voice",
including articles about research advancements, inspiring patient
profiles, and Q&A's with some of the leading scleroderma experts
from around the globe
- Discounts to attend the National Patient Education Conference
- And other benefits
Learn more about membership benefits and join today >>
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What is Chronic Pain?
The American Chronic Pain Association offers answers to some frequently asked questions about ongoing pain and how to manage it. Topics include finding a doctor who specializes in chronic pain, using medications safely, and what to expect from your health care team.
Read more >>
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Clinical Trial Opportunity |
Catalyst for Patients with CTD-PAH
Catalyst is a Phase III clinical study evaluating the safety and
efficacy of bardoxolone methyl (an oral medication) for the treatment of
pulmonary arterial hypertension associated with connective tissue
disease (CTD-PAH). This includes PAH associated with lupus, scleroderma,
Sjögren’s syndrome, rheumatoid arthritis, and other connective tissue
diseases. Approximately 200 patients will be enrolled at centers in
various countries around the world.
Before participating, patients must complete the screening
process at one of the study centers. Eligible patients will receive
either BARD capsules or placebo capsules and will be instructed to take
the capsules once daily for 24 weeks. The study team will follow
patients closely and will conduct visits through the duration of
participation. The investigational drug, study-related procedures, and
doctor visits will be provided. You may receive
compensation for your time and travel.
More information >>
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Disclaimer: The Scleroderma Foundation in no way
endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is
provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.
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