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2016 National Patient Education Conference Hotel Update
Have you booked your hotel room for the 2016 National Patient Education Conference yet? If not, the discounted room rate is available during the conference as well as three
days before and after, subject to availability, and is not guaranteed after
July 7, 2016, nor if room block has sold out. We are close to sell out status and recommend you book your rooms as soon as possible.
You must make your own reservations for the
hotel. Please call the Sheraton New Orleans Hotel directly at (888) 627-7033
and mention the Scleroderma Foundation or you may register online directly with the hotel.
The group rate is $165 plus tax per night for a single or double room.
Creative Minds: Stretching the Limits of Wearable Devices
Whether it’s a pedometer dangling from a belt loop or a skin patch to
monitor heart rate and hydration levels, wearable and mobile devices
have become essential gear for many of today’s fitness minded. But engineers are envisioning even more impressive things to come for optimizing workouts and bringing greater precision to health care.
Did you know that the Scleroderma Foundation is hosting a VIRTUAL
“Stepping Out to Cure Scleroderma” walk-a-thon? This is a great opportunity to
connect with old friends, meet new ones online and virtually walk in memory or
honor of loved one affected by scleroderma.
The National World Scleroderma Day Virtual Walk is connected to “Stepping Out
to Cure Scleroderma”, the Foundation’s premier fundraising event.
Unfortunately, “Stepping Out to Cure Scleroderma” walks do not occur in every
city across America. But
it is important to the Foundation that everyone has an opportunity to
participate in the walk in some way. It is an easy and fun way
to make a difference by raising funds for those living with scleroderma.
Before you begin planning your Virtual Walk, check and see if there is a local walk near you.
Click here to see a list of walk events in your
state. Many of our 22 chapters are hosting walks in 2016 and even have their
own virtual component in the event you cannot attend. We do encourage you to participate
locally whenever possible.
Video: How Can I Manage Systemic Sclerosis Myself?
The Federation of European Scleroderma Associations(FESCA), has
released a series of videos that were recorded at the 4th Systemic Sclerosis
World Congress earlier this year. The workshops cover a variety of
different topics and features. This session addresses coping with the everyday challenges of scleroderma and support groups.
Disclaimer: The Scleroderma Foundation in no way
endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is
provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.
The Scleroderma Foundation is a qualified national nonprofit operating under 501(c)(3) status. The foundation’s federal tax identification number is 52-1375827. Our primary goal is to raise funds for our three-fold mission of support, education and research. The foundation has 20 active chapters and 160 support groups across the country.