Early Bird Registration Rates Still Available for 2016 National Patient Education Conference
The 18th annual National Patient Education
Conference offers educational and networking opportunities for people
living with scleroderma, their caregivers, family members and friends.
Register now and take advantage of the Early Bird Registration rates.
We also
offer a kids program at the conference that is open to younger patients,
their
siblings or even the child of an adult patient. Join us in New Orleans,
Louisiana from Friday, July 29, to Sunday, July 31, 2016!
Click here for more >>
National Study Opportunity |
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Food Choices and Scleroderma
Many people living with scleroderma perceive that what they
eat influences their symptoms related to scleroderma. This study is inspired by people attending
the Scleroderma Foundation Patient Conference who expressed a desire for
research such as this to be conducted.
If you are a person with scleroderma and you experience
related gastrointestinal symptoms such as bloating, cramping, nausea, vomiting,
regurgitation, diarrhea, constipation etc., you may be interested in participating
in this research study.
This is a national study run by the New Orleans Scleroderma Patient Care and Research Center (Lesley Ann Saketkoo, MD, MPH, Tulane University Lung Center) using
telephone counseling and online questionnaires to assess the impact of various
diets that might impact symptoms in scleroderma.
Click here for more >>
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