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| eLetter #642 | January 15, 2016 |
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When the Diagnosis is Scleroderma
 So
you just received the news from your doctor. You have scleroderma.
Now what? Feeling stunned or scared upon your diagnosis is a natural
first response but there are steps you can take to empower yourself and
move forward.
Click here to read more >> |
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Happy 25th Anniversary to the Pulmonary Hypertension Association (PHA) family!
 Congratulations
on your 25th anniversary! On January 12, 1991, at her kitchen table,
Pat Paton held a meeting with her sister and fellow pulmonary
hypertension patients.
Click here to read their Kitchen Table Story >> |
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Living Well with Lung Disease Free Webinar
 And speaking of our friends at the Pulmonary Hypertension Association. They will be hosting an
hour long FREE webinar on Wednesday, January 20 on Living Well with Lung
Disease. Join Kristen Holm, PhD, for a discussion on the ways that
lung disease affects patients and families.
Click here to register >> |
New Support Groups Added
 The Foundation works diligently to expand our network of support groups. We are excited to announce two new support groups to our growing list. Please welcome Las Vegas, Nevada and Jacksonville, Florida to the family.
Click here to see the entire list >> |
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Fibrocell Science Develops Therapies for Localized Treatment of Connective Tissue and Joint Diseases
 Fibrocell is developing a pipeline of cell and gene therapies
for localized treatment of connective tissue and joint diseases using
autologous fibroblasts to deliver a targeted gene.
Click here to read more >> |
Holiday Office Closure
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The Foundation will be closed on Monday, January 18th for Martin Luther King, Jr. Day. Our office will re-open on Tuesday, January 19th at 8:30AM.
"Life's most persistent and urgent question is, 'What are you doing for others?' - Martin Luther King, Jr.
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Disclaimer: The Scleroderma Foundation in no way
endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is
provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.
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