Directions: Take 390 north to exit 16, the second East Henrietta Road exit (Rt. 15A). Turn left off of the exit and continue south on 15A for about 1/2 mile to the Brighton Campus, entrance B, on your left.

Parking: Follow the signs to parking in the designated lot. There will be no charge for parking.

Program Schedule

10:30 am Registration & Lunch

11:30 am Welcome: Mary Beth Bobik-Kadylak, Director of Pt. Education & Support

Marilyn Sibley, Rochester Support Group Leader

11:40 am Awards Presentation

12:10 pm Education Program Welcome: Mary Beth Bobik-Kadylak

12:15 pm Topic to be determined

Christopher Palma, MD
Assistant Professor, Allergy Immunology and Rheumatology, University of Rochester

Q & A immediately following

1:00 pm Break

1:15 pm Cutaneous Manifestations of Systemic Sclerosis

Nana Duffy, MD, MSCE
Dermatologist in private practice. Genesee Valley Dermatology and Laser Centre

Q & A immediately following

2:00 pm Break

2:15 pm Dealing with Loss and Trauma: Developing the Skills of Grief, Grace, & Gratitude

Theo Munson
Department of Bereavement Services, Lifetime Care/Hospice of Rochester

Q & A immediately following

3:00 pm Panel Discussion

4:00 pm Closing Remarks / Program Evaluation

Please dress for an air-conditioned venue and bring layers for comfort.

The Rochester, NY Scleroderma Patient Education Forum brings you information that is important to scleroderma patients, family members, friends, caregivers and healthcare professionals.